Accessing your own genomic data is a civil right but requires strategies to manage safety

(Cell Press) The Genetic Information Nondiscrimination Act of 2008 expanded individuals' access to genetic information by forcing changes to the HIPAA Privacy Rule. These amendments gave Americans a civil right to obtain copies of their own genetic test results stored at HIPAA-regulated laboratories. In a commentary published Jan. 4 in the American Journal of Human Genetics, Barbara J. Evans, describes how civil rights and safety concerns collided after these changes and offers strategies to reconcile the two.

from EurekAlert! - Social and Behavioral Science http://ift.tt/2CD46ti